Saturday, October 31, 2009
I am trying to write a letter to the newspapers, my congressman, and the president about the problems I am having, and how the insurance companies are legalized theives, constantly having to prove my injuries, tired of having attornies tell me that I quote "If you need money, then get off your ass and get a job!", "You are a winey bitch and expect to much!" and "If we have to go to court you are to pretty and we will lose!" just because my injuries are mostly internal and I may look as to what they may believe to be normal,many many many people do not understand the complxities of brain injuries and we judge people by looks all the time, my dad always said to me growing up, NEVER JUDGE A BOOK BY IT"S COVER! and here i am constantly being judged by my cover. If anyone out there would like to contribute a ltetter or anything to say to help me with what I will be sending to the president etc you may send it to p.o.box 470742 celebration, florida 34747 and i will put it with mine, we must have a greater voice instead of being told the brain injuries are all made upin our heads and nothing is wrong with us just because they cannot see it, the insurance companies are robbing us blind, I would never be in this finacial spot if they had paid my long term disability and covered me as I had paid for, they are stealing from us and have no accountabilyt and are getting away woth this all the time. sorry have to go lay down this is too much. love and light KEEP UP
Sat Nam, as many of you know I have been blessed with a beautiful person in my life to which she has given me great support, her name is Siri-Gian and truly she is a miracle for me. I also now know that she has put out a call for even more blessings and greater support for me and I am truly overwhelmed buy all of the support from all of you out there who have contaceted me and all the others who are praying and saying te mantra DHAN DHAN GURU RAM DAS for me for themselves and all the others who are in desperate need. I have had the devestating news that my attorneys dropped me after wating 21/2 years of doing nothing for me and the disabilityterminating me trying to say that i am not disabled (unbelievable) they did surveliience the3y say and vaguely say it is me, you cannot tell,trying to not pay. this is how the insurance compainies work, you pay all the premiums and when you need them most no one is there for you, I have been told that they wish I was dead, that is better for them, can you imagine being told that! I can barely exist not even live with my social security and will most definitely lose my home that i have fought so hard to keep during all this and the impact that this has had on my already precarious health has beennothimg short of devestating, so I bless you all and thank you and pray that all of your lives are filled with the miracles of Guru Ram Das. I eyes filled with tears each time someone contacted me telling me how they were supporting me from all ove r the world i have had responses it is truly amazing, my heart is blown wide open, and as one beautiful strong woman (Beth) said to me, never give up, miracles come from everywhere, and so I shall never give up. As Yogi Bhajan said the time s are difficult but the way to do it is to KEEP UP, KEEP UP, and so I shall. Thank you all.
Friday, October 2, 2009
sorry for the delay i could not remember my sign in or remember where I put my sign in notes. I am as I am sure many of you are The Post It Queen around my house and everywhere I go, so I can remember things or to remind me of something, something I never thought I would be doing at such a young age. I am hoping alot of you signed up for the Summit at Disability.gov to help give us a voice and today at the sight there is alot of info about what is being done for people with disabilities. I can assure you that I am NOT a political person but we do need a voice. Anyhow back to day 2 where I left off so long ago. The process and nightmare now begins when I see my doctor God bless his soul, and he starts sending me foer test and tests and tests, I have had enough MRI's and Cat scans and exrays to light up the world for a week I am sure. Wow was that difficult and painful to endure, but the proof is in the pudding, the spinal damage has been confirmed as well as the tears and brusing and sweelling of the brain, although it was a relief to know that what I was feeling was real in all my confusion but the reality was also quite a shock for me as well. I just could not grasp and understand what had happened to me, who is this person, I had always been very very healthy, riding my bike 10 miles a day, doing pilates 4 times a week, traveling all over the country, hiking all kinds and types of mountains, danciung etc, so who was this broken confused person on these images and baffled mind? I just didn"t get it. All I did was stop at a red light!!!!!!!!!!!!!!!!!!!!!!!!!! My doctors tell me that had I not been in such great shape the damage would have been much worse, oh my God you"re kidding right? I couldn"t handle this, someone please help me.
Friday, September 25, 2009
Hi everybody, I know I have not signed on in awhile, having alot of difficulties, but I need your support and the support for all of us. I have applied to the National Summit for Disabilities to be a delegate at the conference and to be a vioce for all of us that have fallen through the cracks with our brain injuries and WE NEED TO BE HEARD so I ask that all of you go to the website Disability.gov and go to the national summit area and sign up to be a delegate so we can all go as a voice for us. Speak up show support so maybe I might not get picked one of you will and we can become a force to be reckoned with and heard, they will offer a scholarship for financial help for transportation and hotels, tell your family members, friends, cousins, all who can go and help us, prayers lots and lots of prayers, we can do this!!!!!!!!!!!!!!!!Everbody only thinksof the military when it comes to the TBI's but the rest of us know that it is not just them, although God Bless them for their sacrifices for us we need to be counted as well. So please DISABILITY.GOV TODAY!!!!!!!!!!!!!!!!!c ya soon
Wednesday, September 9, 2009
ok I kind of left off with some things that have worked for me , and I just want to say that these are things that I have always done for myself so anybody at any time can utilize these things not just someone with a brain injury, it just helps them especially well. One other thing I have used is rolfing, you have to remember that EVERYTHING you experience in your lifetime good bad or indifferent has been stored in your body somewhere, whether it is in the tissue , muscle, fat, or whereever, it is there, so what the rolfing does is help to release that from your body. So if you have the opportunity find a certified rolfer in your area and they can help you to release the trauma from your body and brain to once again help bring you back into some sort of balance and give you a strong start forward. If you don't know where to look go to the Rolfing Institue and they can send you a directory of rolfers, the institue is located in Boulder, colorado and the training is very exstensive for the therapists, do not be fooled by those who call themselves structural integrators, they are not the same although they will claim to be, and those that have advanced rolfing experience on top of there initial certification is best. Hope this helps.
Sunday, September 6, 2009
OK I think I am getting the hang of this stuff and after just rereading some of the blog I am shocked at the misspells and improper english but oh well it is what it is , so have a good laugh with me over my NEW english and lets get on with it. I thank you all for your comments , it helps to have feedback otherwise I feel like I am talking with myself and I can assure you I definetly do enough of that just to keep me organized (if that is what you call it these days). Please remember, if you have memory loss write this down, your nutrition is your FIRST line of defense in helping to bring your body/brain back into some sort of balance and the recipe that SiriGian has placed on her website SoulAnswer.com for mung beans and rice is especially important because that recipe does exactly what i said, it brings the body back into balance, and from there then your body/brain has a fighting chance, trust me I have been eating it for weeks on endand oh yes it is very inexpensive to buy as well, for those who are experincesing financial issues, do your research for specific brain foods, LISTEN to your body it will tell you what you need, it is working very very hard to get tou back o track so super nuorish it. Here is a fresh juice that I make that covers te body nutrtionally from a-z, you need a good juice EXTRACTOR, ready here it is: 6 carrots, 2 handfuls of fresh spinach,2 celery stalks, 1 green pepper, 1/4 beet,1/2 cucumber, 1/4 inch slice fresh ginger, take the beet slowly because it is very strong even if it seems like a small slice, this will make alot of juice, I think about 25 oz, can't remeber but you must drink ANY freshly made juice immediately because the live enzymes die quickly when exposed to the air, it tastes very good but taste green hte carrots make it sweet so enjoy but drink this daily it will build you quickly if you let it, remember vegetables are body builders and friuts are body cleansers. SO DRINK UP! This will give your body the fight it needs to keep up.Gotta rest for now be back soon, please do yourself a favor and get the book Foods For Health and Healing, it is small but very powerful recipes in there, you can get it at a-healing.com, not sure where else.
Friday, August 28, 2009
OK today is a new day, I have decided after wallowing for awhile ( a luxury I allow myself sometimes for short periods), that i am not going to go through my injury step by step but offer things that have worked for me to help me heal more and more. you see my doctors wrote me off saying that this is the way you are and will be so here are your drugs and live with it, WELL I am not a person who is willing to settle for someone giving up on me because I will not settle for less than 100% no matter how long it takes. I assure that I have many many challenges but since I have had to do this alone and no support I push the best I can, I have almost lost my home, my health, my credit, my practice, i was an acupuncture physician, massage therapist, kundalini yoga instructor for many many years, and the list goes on, BUT the ONE thing that I have never lost is ME and my faith and so forward we will go. If anybody wishes to discuss the challenges feel free to respond and we will do so, whether you are the caregiver or the patient. I have alway been involved in nutrtion and alternatives healing aspecst and these are the things that have been helping me. This is not medical advice but only personal experiences that have worked for me. Here we go, in the beginning I got acupuncture and massage therapy 3-5 days a week, I am so overly sensitive to touch that it was extremely painful for me but I did it anyway, I new that I had very little time frame to bring my body and mind into some sort of balance, I have achiropractor as well but still to this day she is only now being able to do some sort of minimal adjusting but the things she could do helped as well, I awlo started b-12 shots daily because b-12 helps to heal the nerves and the connections in transmissions, now I do once a week or every other week depending on what my body needs, it also helps with the energy because your body is using incredible amounts of energy to try to maintain itself. Although difficult for me to get in and out of bathtubs I would take baths with healing essential oils (medical grade is best) mixed with epsom salts, brain games ,brain games, brain games, do them everyday, luminosity.com is great for that, and YES it is extremely frustarting bvut do them anyway no matter how long it takes to finish them. You have to understand that I have no insurance no help and no doctors will work with me because it was a car accident and they do not want to be involved in an active case, so I have had to find ways to help myself, and the process is very long. I have not been able to doyouga but I can do the yoga in my head, remember the body does not recognize whether you are actually doing it physically or not so long as yuor mind is doing it, it will respond, so do it! I am only able to walk, sit, stand for about 10 minutes at a time , so that is what I do and I push for 1 sec- 2 second however many more I can push for I do. Remeber our healing is measured in moments, cherish them and give yuorself the credit for them, you have to meve on your schedule NOT what someelse thinks it should be according to their protocal, you know youo body better than anyone. Eat specific foods that are brain foods, things that will nourish the nerves, example, walnuts are brain food they looklike the brain, ginger strengthens the nerves, lecithin, i eat a recipe called mung beans and rice in the heealth book caleed FOODS FOR HEALTHAND HEALING, very important, make all your own fresh juices, fruits are body cleansers, vegetables are body builders, is you are taking alot of drugs you must cleanse to keep your liver and kidneys strong, they are your biggest detoxifyers for your body, also jucing gives your body live nutrtion to strenthen it better and faster. If you are interested in what I do please ask, I am very happy to share. Lots and lots of rest, and most of all FEED YOUR SOUL!!!!!!! Gotta go be back soon :-)
Tuesday, August 25, 2009
Very bad day today, the insurance companies in their wondorous ways has decided to deny my disabilty claim today and states that I am fine and nothing is wrong with me to enable me to collect and type of disability from them, but I quess social security felt my brain and spinal injuries were good enough for them, very depressed and upset, how do they expect people to live, ss barely covers my maortgage with little to spare to live on, heartbreaking again. Thank goodness for my mantras dhan dhan ram das, 22 pauri of japji and 25 pauri of japji, I can't give up and go down the deep dark hole
Monday, August 24, 2009
Please forgive me to those who post comments I would love to comment to you but am not sure how, do I post comment here or do i respond in email since you are also coming to email? The computer savy my hat is off to you just give me simple on off buttons and I am good to go. OK day 2 here we go. My eyes are open laying in bed and my dogs are giving me my daily dose of morning love, such pure love what a joy to wake up with, but my head is spinning so badly I can hardly focus and I find that I can barely move, my brain is a big cotton puff and as I look around i am not sure if anything looks familiar or not, i felt as though my spirit had jumped out of my body on impact and hasn't been able tofind it's way back to me yet, it is a very strange and empty feeling, I am very disconnected, but i have to pee so I must get up. Well 30 minutes later I have found a way to move I think but the pain is almost unbearable but I get up to sitting position hanging on for dear life cuz the spinning inside my head is unreal and the headache is blinding only to attempt to stand and come crashing to the floor, aha my legs and my body cannot support me, omg what a shock that was, well i still have to pee so i crawl to the bathroom,(by now my dogs think this is a new game we are playing, so they want to help), finally I can pee, now the next step hugging the walls to my vanity so i can wash my face and brush my teeth I look in the mirror shocked again asking WHO is that person looking back at me, ok now this is getting really scary, I must lay back down because i cannot hold me up any longer. Laying here I am so discombobulated that I cannot figure out what is going on and I hav only been awake for maybe 45 minutes, boy am I in trouble.
Sunday, August 23, 2009
Patience OMG, I am still trying to figure this blog thing out. How exciting to find others out there , Sirian Gian suggested that I do this and I am glad I did but for me patience is deffinately the word of the process here. I am not a computer person by nature so if it looks goofy have a good laugh on me. :-) There is a saying that started who knows when but it goes like this, BE CAREFUL WHAT YOU WISH FOR! ah the truth be known, my journey began with this. On August 1 2007, i was driving home from work having my usual conversations with God about my day and was very frustrated that I was moving to far off my spiritual path into the corporate world and during my conversation I specifically said God I can"t do this anymore I am getting to far from me and low and behold BAM! I was rear ended at a red light (you know the things you sre SUPPOSED to stop at), where did this person come from , I was the only one on the road, I did not even realize that I had been hit, all I heard was this loud bang , it sounded like a bomb went off, and the next thing I knew this guy was screaming at ME, through something at me and left. I was stunned. schocked etc... it felt liker my head exploded and all at once the pain ,numbness, paralysis, began it was instant but the only thing my mind could comprehend was that there was no blood, so of course when I called the police and they asked if I needed an ambulance after describing my symptoms to dispatch I said no because no blood=no ambulance. How foolish is that! That my friends was the bigest mistake I could have ever made, I had to wait for 2.5 hours for the police to show up even though they drove past me 3 times,one of their own was hurt, so I didn't matter, and now th juorney begins. Finally they show and I was 2 miles from my home and I was hurting so bad all I wanted to do was go home, so the police refused to write a police report and off I went. So much for justice there. Got there barely able to move or even think cleart at all, really as I look back on it I wasn't even sure where I was or who I was what a blur. Day 2 begins with I must see my doctor my head is exploding and I am spinning so far and nasueas and by the way I cannot feel my arms and my back is a mess and my right face is paralyzed. HOLY SMOKES so this is what feeling like you just got hit by a mac truck feels like. AND THE JUORNEY BEGINS...........
Friday, August 21, 2009
Hi everybody, welcome to my blog and my journey through my brain injury and WOW what a journey it has been so far. I am new to this blogging thing so be paitient, ha now THAT"S a funny word, when we were getting ready to come to this earth and standing in all the lines to get equipped for here I thought the Patience line said LUNCH and boy did I ever miss the patience for sure but rest assured there is always a plan to teach us what we may have missed in those lines, hense the injury to REALLY teach me what being patient is all about, ok ok I think I got enough already! I am sure that we all have many things to share and share we will so that we can and will all grow together to be the strong and beautiful being that we all are. REMEMBER that we are all our own best entertainment so have a good laugh and maybe a good cry every now and then and lets get moving, times awasting!
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