Friday, October 2, 2009
sorry for the delay i could not remember my sign in or remember where I put my sign in notes. I am as I am sure many of you are The Post It Queen around my house and everywhere I go, so I can remember things or to remind me of something, something I never thought I would be doing at such a young age. I am hoping alot of you signed up for the Summit at Disability.gov to help give us a voice and today at the sight there is alot of info about what is being done for people with disabilities. I can assure you that I am NOT a political person but we do need a voice. Anyhow back to day 2 where I left off so long ago. The process and nightmare now begins when I see my doctor God bless his soul, and he starts sending me foer test and tests and tests, I have had enough MRI's and Cat scans and exrays to light up the world for a week I am sure. Wow was that difficult and painful to endure, but the proof is in the pudding, the spinal damage has been confirmed as well as the tears and brusing and sweelling of the brain, although it was a relief to know that what I was feeling was real in all my confusion but the reality was also quite a shock for me as well. I just could not grasp and understand what had happened to me, who is this person, I had always been very very healthy, riding my bike 10 miles a day, doing pilates 4 times a week, traveling all over the country, hiking all kinds and types of mountains, danciung etc, so who was this broken confused person on these images and baffled mind? I just didn"t get it. All I did was stop at a red light!!!!!!!!!!!!!!!!!!!!!!!!!! My doctors tell me that had I not been in such great shape the damage would have been much worse, oh my God you"re kidding right? I couldn"t handle this, someone please help me.
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Dear Amrit,
ReplyDeleteI am so very happy that you are finally getting the diagnoses that you have needed for so very long! What torment to not only have all the physical damage that you have, but also not having a good diagnosis that allows you to explain this fully to yourself and others, as well as get some kind of treatment for it can leave you in limbo hell!
I certainly pray that now you can proceed very, very well with your medical treatment, and that this gives you solid proof for your other situations as well!
Also, I pray that you find a way to impact the Disability Summit! You are so very articulate and strong in character. Alas, I can only add my prayers on your behalf right now. Is there any way you can at least submit a position paper, even if you can't make it there? And can you get in touch with some others who will be lobbying for brain injuries as well so that you can in some way add your voice to theirs?
Lots of Love,
Siri-Gian
Sat Nam, ji!
ReplyDeleteYou go, girl! I am with Siri Gian-ji in offering my prayers and best wishes for you. I am a school teacher who has had students with traumatic brain injury, and a daughter who is hoping to continue her studies to earn a PhD in Neuro-biology.
It is so sad in these times when we should be sharing and uplifting each other that many who are in the position to alleviate suffering and pain choose to become greedy, and money hungry, and hold out on the very people who have trusted them to help in times of need...and paid for many years to count on that bit of assurance! Maybe because of things like that we are all being called to become a community and help out each other in creative ways?
I offer you my prayers, bhen-ji! I offer you my support. We have something in common. I read from Siri Gian that you are going to take Amrit at Winter Solstice! I feel that I am being called to take Amrit at next year's Summer Solstice! We shall be sisters because we will be daughters of the Siri Guru Gobind Singh-ji!
Love and light to you!
WAHEGURU!!!!!!!!!!!
Parvati